His mother said just one seizure could kill him ( Facebook / Keep Billy Alive: bit.ly/2qoaGei )
An 11-year-old boy who was dying from severe epilepsy has not had any seizures for 300 days since being prescribed a medical marijuana product.
Billy Caldwell, whose intractable epilepsy means he cannot get help through medication or diet, began treatment with cannabis oil in the US, where medical marijuana is legal, in 2016.
His prescription was transferred to his local GP, Brendan O’Hare, in Northern Ireland, and Billy became the first person to receive a prescription for medical marijuana in the UK.
The medicine, which contains a compound found in cannabis plants called CBD, does not contain any synthetic chemicals. The company, Billy’s Bud, was named after Billy in July.
His mother, Charlotte Caldwell, said Billy used to suffer up to 100 seizures per day, has now not had a single seizure for 300 days. Ms Caldwell said the cannabis oil has also improved his autism, for example, better eye contact and engagement with books and toys.
“To me, that’s incredible, because one seizure can kill him,” she told ITV News after 90 days of no seizures.
Campaigners say CBD can also help with diseases including cancer and Crohn’s disease. It is legal in the UK and the Medicines and Healthcare Products Regulation Agency said CBD has a “restoring, correcting or modifying” effect on “physiological functions”.
He also takes a compound called tetrahydrocannabinolic acid (THCA), which is illegal in the UK due to its links with the psychoactive effects of cannabis.
Earlier this year an independent committee set up “Sponsor a Bud” programme, allowing low income families from Ireland and the UK to obtain CBD via a Bud grant.
The family is also holding a Billy’s Bud festival on 9 September in Castlederg, County Tyrone, to celebrate the support they received for their “Keep Billy Alive” campaign.
“Following extensive treatment with CBD oil, Billy is now more than 300 days seizure free,” Ms Caldwell told Donegal Now.
“To celebrate the phenomenal change for the better in Billy’s health, we have decided to hold a small celebration in recognition of all those people that have helped us “Keep Billy Alive”.”